News

February 13, 2022

8P HERO BELIEVED TO BE THE ONLY CHILD IN THE WORLD WITH A COMBINATION OF RARE DISEASES.

Hannah Pender is believed to be the only child in the world with a combination of rare diseases. She was…

February 24, 2021

PATIENT-LED COMMUNITIES ACCELERATING RARE DISEASE RESEARCH

Source Article The Rare As One Project, supports 30 patient-led rare disease organizations that are working to develop and strengthen a collaborative research network in…

February 3, 2020

CHAN ZUCKERBERG INITIATIVE TO FUND 30 PATIENT GROUPS, AIMING TO BUILD A MODEL FOR TACKLING RARE DISEASES

Click here to view the whole article on Stat News Click here to view the whole article on Pharmacist.com Excerpt:…

January 22, 2020

NEW ZEALAND HERALD – KATHRYN HAZELDINE: THE LIFE OF A 5-YEAR-OLD WITH CHROMOSOME 8P CONDITION UNABLE TO YET WALK OR TALK

Five-year-old twins Kathryn and Alexander Hazeldine have a special bond. Photo / Ben Fraser Article by: Leah Tebbutt –…

January 22, 2020

PROJECT 8P INTERVIEW ON OVID THERAPEUTICS’S BOLD MEDICINE PODCAST

Project 8p Founder & President, Bina Shah, was recently interviewed on the Ovid Therapeutics’s Bold Medicine Podcast with Amit Rakhit,MD,…

January 22, 2020

PROJECT 8P MEMBER ON BBC RADIO SCOTLAND

Rebecca Pender, Project 8p Member, and Mother to her daughter, Hannah, was recently featured discussing her daughter’s diagnostic journey on…

July 12, 2019

BRAVO TV – DENISE RICHARDS BREAKS DOWN WHILE EXPLAINING THE RARE DISORDER THAT AFFECTS HER DAUGHTER, ELOISE

Article By Tamara Palmer Denise Richards adopted her 8-year-old daughter, Eloise, in 2011, joining daughters Sam and Lola (who she had…

July 1, 2019

FOX 5 NY – FAMILY OF GIRL WITH RARE CHROMOSOMAL DISORDER CREATES NONPROFIT TO HELP RESEARCH CONDITION

NEW YORK (FOX 5 NY) – Karina Shah, 6, has spent her life living with a Chromosome 8p abnormality, a rare…

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