Partners

Global Genes

Project 8p is a member of the GG Foundation Alliance

Genetic and Rare Disease Information Center (GARD)

National Center for Advancing Translational Sciences (NIH)

Association of Medical Research Charities (AMRC)

Clinical Trials Transformation Initiative (CTTI)

Genetic Alliance

Advocacy with tools and programs to promote access to information, research and services for patients and families affected by genetic diseases.

National Center for Advancing Translational Sciences (NIH)

Rare Disease Legislative Advocates

EURORDIS – Rare Diseases Europe

FDA

Developing Products for Rare Disease & Conditions

Orphanet

A rare disease database that provides information on genes or conditions. On each specific rare disease page, there are links to patient organizations and expert medical centers noted for that specific disease.

Rare Diseases International

[Geneva, Switzerland] Rare Diseases International is a global alliance of individuals living with any rare disease. It aims to bring together national and regional rare disease patient organizations and create a strong common voice to advocate for rare disease as an international public health priority.