PROJECT 8P MEMBER ON BBC RADIO SCOTLAND

Rebecca Pender, Project 8p Member, and Mother to her daughter, Hannah, was recently featured discussing her daughter’s diagnostic journey on…

BRAVO TV – DENISE RICHARDS BREAKS DOWN WHILE EXPLAINING THE RARE DISORDER THAT AFFECTS HER DAUGHTER, ELOISE

Article By Tamara Palmer Denise Richards adopted her 8-year-old daughter, Eloise, in 2011, joining daughters Sam and Lola (who she had…

FOX 5 NY – FAMILY OF GIRL WITH RARE CHROMOSOMAL DISORDER CREATES NONPROFIT TO HELP RESEARCH CONDITION

NEW YORK (FOX 5 NY) – Karina Shah, 6, has spent her life living with a Chromosome 8p abnormality, a rare…

FOX 5 NY – BRAVE GIRL INSPIRES RESEARCH ON RARE CHROMOSOMAL DISORDER | THE BIG IDEA

Article By Teresa Priolo, FOX 5 NY Karina Shah, 6, has a song in her heart and a beat in…

PHARMAFILE – LIVING WITH A RARE CHROMOSOME DISORDER

Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80…

PENINSULA NEWS – ROLLING HILLS ESTATES MOM SEEKS CURE FOR 6-YEAR-OLD WITH RARE DISORDER THAT AFFLICTS JUST 1 IN 65 IN THE WORLD

Article By Bradley Bermont The first sign of trouble was her newborn’s faint cry. “In my mind, I’m thinking that’s…

WEATHERFORD DEMOCRAT – WEATHERFORD FAMILY HOPES TO TRAVEL TO NY FOR RARE DISORDER CONFERENCE

Article By Madelyn Edwards news@weatherforddemocrat.com When doctors diagnosed Shelby Prewett with chromosome 8 disorder at age 4, the information they…

ROMPER – DENISE RICHARDS OPENS UP ABOUT RAISING HER DAUGHTER WITH SPECIAL NEEDS & IT’S NOT ALWAYS EASY

Article By Christina Montoya Fiedler Many people know Denise Richards from her rocky relationship with actor Charlie Sheen. For a…
1
2
3
4
5
6

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.