News

January 22, 2020

PROJECT 8P MEMBER ON BBC RADIO SCOTLAND

Rebecca Pender, Project 8p Member, and Mother to her daughter, Hannah, was recently featured discussing her daughter’s diagnostic journey on…

July 12, 2019

BRAVO TV – DENISE RICHARDS BREAKS DOWN WHILE EXPLAINING THE RARE DISORDER THAT AFFECTS HER DAUGHTER, ELOISE

Article By Tamara Palmer Denise Richards adopted her 8-year-old daughter, Eloise, in 2011, joining daughters Sam and Lola (who she had…

July 1, 2019

FOX 5 NY – FAMILY OF GIRL WITH RARE CHROMOSOMAL DISORDER CREATES NONPROFIT TO HELP RESEARCH CONDITION

NEW YORK (FOX 5 NY) – Karina Shah, 6, has spent her life living with a Chromosome 8p abnormality, a rare…

June 17, 2019

FOX 5 NY – BRAVE GIRL INSPIRES RESEARCH ON RARE CHROMOSOMAL DISORDER | THE BIG IDEA

Article By Teresa Priolo, FOX 5 NY Karina Shah, 6, has a song in her heart and a beat in…

April 11, 2019

PHARMAFILE – LIVING WITH A RARE CHROMOSOME DISORDER

Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80…

March 13, 2019

PENINSULA NEWS – ROLLING HILLS ESTATES MOM SEEKS CURE FOR 6-YEAR-OLD WITH RARE DISORDER THAT AFFLICTS JUST 1 IN 65 IN THE WORLD

Article By Bradley Bermont The first sign of trouble was her newborn’s faint cry. “In my mind, I’m thinking that’s…

March 8, 2019

WEATHERFORD DEMOCRAT – WEATHERFORD FAMILY HOPES TO TRAVEL TO NY FOR RARE DISORDER CONFERENCE

Article By Madelyn Edwards news@weatherforddemocrat.com When doctors diagnosed Shelby Prewett with chromosome 8 disorder at age 4, the information they…

February 7, 2019

ROMPER – DENISE RICHARDS OPENS UP ABOUT RAISING HER DAUGHTER WITH SPECIAL NEEDS & IT’S NOT ALWAYS EASY

Article By Christina Montoya Fiedler Many people know Denise Richards from her rocky relationship with actor Charlie Sheen. For a…

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