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WEATHERFORD DEMOCRAT – WEATHERFORD FAMILY HOPES TO TRAVEL TO NY FOR RARE DISORDER CONFERENCE

Article By Madelyn Edwards news@weatherforddemocrat.com When doctors diagnosed Shelby Prewett with chromosome 8 disorder at age 4, the information they…
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ROMPER – DENISE RICHARDS OPENS UP ABOUT RAISING HER DAUGHTER WITH SPECIAL NEEDS & IT’S NOT ALWAYS EASY

Article By Christina Montoya Fiedler Many people know Denise Richards from her rocky relationship with actor Charlie Sheen. For a…
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EVENING TIMES – JEANS FOR GENES PROVIDES THEIR HELP TO UNIQUE HANNAH

JEANS for Genes Day on September 18 will raise vital funds for children with genetic disorders in the UK. And…
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Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible

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The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.