Take Action

Volunteer

Our volunteers are critical to our mission. There are many creative ways you can support our community.
If you have an idea or can make a connection to a friend who can help, no matter the subject or scale, that could help Project 8p, please do not hesitate to fill out the form below. Any contribution makes a difference.

Join the Patient Leadership Board

The PLB is a group of dedicated members volunteering 5 hours a month to assist Project 8p with empowering our community goals. Serving as the voice of the 8p families, our members provide programs and support for families. To apply for the PLB, please fill out the volunteer form and select ‘Yes’ for PLB membership.

Fundraise

Raising awareness and funds is a valuable way to support Project 8p Foundation. The possibilities are endless. No fundraiser is too big or small. Please complete our volunteer form, and our team will assist you.

Story Sharing

Sharing 8p community stories is a critical component of patient advocacy. Our team is always seeking new content.

Social Media

Have an idea for our Newsletter or Blog? Send an email to veigh@project8p.org

Write an Article

Send us videos of your 8p hero! These videos are featured on our Saturday Spotlight Series. To participate or share other social media ideas please email amber@project8p.org

Youth Volunteer Program

We are excited to announce our newest volunteer program. An opportunity for youth 8p siblings/relatives to support Project 8p Foundation. Please email kaiti@project8p.org to begin participating.

Youth Volunteer Opportunities

  • Host a Fundraiser
  • Create Social Media Content
  • Have an idea? We would love to hear from you!

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.