Apply For Funding

Project 8p has a grant program that accepts unsolicited LOI’s here as well as a publicly posted general Request for Proposal (RFP) that provides detail regarding a general area of interest, sets timelines for review and approval, and uses an expert review panel to make final grant decisions.

We are committed to sharing biospecimens, cell lines, animal models, and de-identified data.

Review Criteria

When reviewing a proposal, the committee members are asked to consider the extent to which the proposed research meets the following criteria. The committee recognizes that some of these criteria will not apply to all research proposals.

Research focuses on issues and concerns that are known or believed to be considered important by people with chromosome 8p or related disorders.

Research is scientifically rigorous.

If applicable, new data is feasible to collect (for proposals that involve obtaining additional data not already collected via the Chromosome 8p Registry).

Research has the potential to definitively answer an important question.

The willingness of the investigator to publish and share their findings with the broader scientific community

For biospecimens only: The ability to successfully complete a material transfer agreement (MTA) with the Project 8p Foundation. Additionally, the type of samples requested and the quantity available may determine whether biospecimens are transferred.

Once an LOI is considered, we will then provide full Application Instructions.

  • We are accepting RFPs. Please contact us at info@project8p.org.
  • We are committed to sharing biospecimens, cell lines, animal models, and de-identified data.

Grant Indirect Cost Policy

  • The key differentiating factor between “direct” and “indirect” costs is whether the cost is specifically required for the project or program to meet its objectives:
  • Direct costs are expenses directly incurred for the specific project or program being funded. Examples include salaries for program staff, travel expenses, materials, consultants required to execute the grant. Expenses like these would not be incurred if the project or program did not exist.
  • Indirect costs are overhead and administration expenses necessary to support an organization’s general operation, which are thus shared across projects or programs.
  • Examples include rent and utilities, office furniture, computers and information systems, and the costs of functions like development, finance and accounting, IT, HR, and legal. Expenses like these would be incurred in some amount with or without a specific project or program grant. Indirect costs are those for activities or services that benefit more than one project. Their precise benefits to a specific project are often difficult or impossible to trace.
  • Policy For Universities: Project 8p recognizes that grant award recipients may have overhead costs that are not directly attributable to the proposed project but are necessary to carry out the proposed project. Project 8p will not fund indirect costs, and therefore can only make grants to researchers and institutions that can absorb the indirect costs of the project. Grantees should discuss such an exception prior to submitting proposals.
  • While the definitions above provide general guidance, Project 8p reserves the right to review all costs and budget assumptions on a grant by grant basis.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.