Together Towards Treatment

Our mission is to empower a unified community for Chromosome 8p Heroes for a meaningful life today while accelerating treatments for tomorrow.

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Fundraising Campaign

Project 8p Faster

Over 550 children with 8p throughout the world conquer daily challenges most of us take for granted, while averaging 125 hours of therapy and at least 1 doctor visit every month. Through Project 8p, these kids and their families know they’re not alone and they now have great hope knowing that the Project 8p team is working tirelessly on their behalf.

A Compelling Case-for-Investing

Inspirational donors will transform science and human health to better understand and treat chromosome 8p disorders. Motivated donors are sought to ensure continued speed in connecting silos and supporting some of the
world’s greatest scientists and innovators gathered by Project 8p to seek immediate treatments and long-term cures for 8p kids.

Transformational Donors are Sought

In solving the 8p problem, such donors will be part of an even grander vision to ensure that all children and families live happy, healthy lives. There are not too many things more important than that.

About us

The Project 8p Foundation was created in 2018. It is at a pivotal point to invite transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ genes on the short arm of the 8th chromosome (8p). These genes can be missing or duplicated and cause significant disruption to the  neurological system, thus all organs and functions of the body – with deficits in cognitive functions, gross motor skills, social development and other challenges from infancy onwards throughout life;

To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow.

Cure genetic brain disorders with novel technologies that are accessible to all.

Meet the Heroes

We are a group of over 550 8p heroes that live all over the world and come in different shapes and sizes.

Despite the differences, Chromosome 8p shares many similarities. We are all hard working individuals that average 1,500 hours of therapy a year and at least 1 doctor visit every month. Just like most people, we deserve to enjoy every opportunity that life has to offer. And like superheroes always do, we seek victory as we try to conquer our daily challenges and end our day with a smile as we find the joy in knowing we are not alone. We need each other.

Join the Cause

There is no cure for 8p disorders, nor is there a standard course of treatment.

We are driven by a simple question: What can we do for our child, family member, friend, or patient impacted by this diagnosis? We’re committed to leaving no stone unturned in order to help 8p heroes in a meaningful way.
Researchers are trying to uncover which genes are crucial, how they work, and what treatment options are possible. Without your support, 8p heroes face daily challenges in normal things most take for granted like walking and talking. We have seizures and heart defects and need you to join the cause.

Latest News

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Our Sponsors

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.