Events

Chromosome 8p Day

Celebrate August 8th annually for Chromosome 8p Day and help us raise awareness and Take Action

8000 Steps for 8p

Join Project 8p Foundation every August for our annual 8,000 Steps for 8p. An awareness and fundraising event to accelerate treatments for rare Chromosome 8p Disorders. Walk, run, stride, or ride in honor of 8p heroes around the globe.

All funds raised support Project 8p’s mission to empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow.

Share What Works

Speaker Series

Share What Works

Virtual Caregiver Nights

An opportunity to connect and collaborate with your fellow 8p caregivers.

8p Family & Science Conferences

Research Roundtables

Third Monday of every month

Dr. Mona Delahooke – Live Presentation & Q&A

Dr. Mona Delahooke Live Presentation & Q&A November 5th at 5:00 PM PT Dr. Mona Delahooke, pediatric psychologist, expert on…

Research Update & Family Clusters

Join us Saturday, February 6th from 11:00 AM – 12:30 PM EST Please join us for the opportunity to network…

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.