To establish a Commission that is a patient-driven collaborative group of stakeholders to advance novel technologies to treat people with neurodevelopmental diseases with complex copy number variants/large chromosome anomalies.
Neurodevelopmental copy-number variants: A roadmap to improving outcomes by uniting patient advocates, researchers, and clinicians for collective impact
With hope and perseverance, everything is possible
No one knows a disease better than those who live it every day. Patients’ active involvement is critical for accelerating the development of treatments.
Project 8p Chan Zuckerberg Initiative