TeleEcho Model For Professionals

Coming Soon…

We are building a network of 8p providers!

This is a crucial step towards improving the lives of our 8p heroes.  We welcome providers of any speciality. 

What is an ECHO?

Moving Knowledge, Not People

Echo bridges the care gap between community professionals, patients and their families.

Project 8p has joined forces with ECHO Autism to facilitate remote learning and collaboration amongst a worldwide network of 8p providers. Leveraging the capabilities of ECHO, Project 8p will harness the power of technology to disseminate knowledge, empowering professionals in the 8p community to provide high-quality care to individuals with chromosome 8p disorders. This partnership also serves to advance the development of a standard of care for 8p Heroes.

How it Works

Professionals receive specific de-identified case guidance using a convenient, interactive, web-based, small-group format.

Knowledge-sharing networks create a learning loop:

Community providers learn from specialists.

Community providers learn from each other.

Specialists learn from community providers as best practices emerge.

Who should participate in a Project 8p ECHO?

The Project 8p ECHO Program welcomes all professionals involved in the care and support of individuals with chromosome 8p disorder. This includes but is not limited to: pediatricians, geneticists, neurologists, cardiologists, neuropsychologists, genetic counselors, speech therapists, occupational therapists, physical therapists, nutritionists, educators, and nurses. 

Whether you’re a seasoned specialist or have acquired a new patient, the Project 8p ECHO Program provides a collaborative platform where expertise is shared to enhance the lives of 8p Heroes.

For inquiries, please email kaiti@project8p.org

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.