Orphan diseases may be rare but are numerous and substantial. For over 7,000 known rare diseases, 95% of them have no medicine or treatment.
Through co-operative efforts supporting Project 8p’s mission, we can accelerate therapy development and seriously consider treatment for our heroes.
8p families and stakeholders can help with transparent knowledge sharing and free and open-access to researchers and partners. Our collective experiences will help us achieve:
- Advancement of intervention through medicine, care, and gene therapies
- Cost savings and maximize our investment of time and resources
- Eliminate duplication of efforts and delays – every minute matters
In some cases, we have sadly lost lives of 8p heroes battling conditions that are relatively unknown.
Ways To Get Involved
The Project 8p Task Force is not a group that is merely wishing for a cure. Instead, we are working hard to ensure we find treatments on any or all symptoms through biotechology, biopharma, traditional and unconventional means.
If you have an idea no matter the subject or scale, but could help Project 8p, please do not hesitate to send us a message. Any contribution can be useful if applied and expressed.
Without your donations, the individuals face daily challenges in normal things most take for granted like walking and talking. They also deal with serious health impacts with cognitive impairment, seizures and heart defects. We are working very hard to help our beautiful 8p heroes. Join the Cause.
Join the Cause
We welcome anyone who is interested in helping us achieve our mission. Bring your expertise to help us increase the number of participants, researchers, and build a community. Even if you can share a post, that’s joining the task force. By sharing information about patient history, we become a resource for each other to learn about prognosis and help find treatment. Email us at firstname.lastname@example.org for general inquiries. If you are unsure of your specific test results and may have a Chromosome 8 diagnosis, you may be eligible for free testing.