Alliances & Partners

Alliances

France

La Maison 8p is the first French association entirely dedicated to families affected by changes to the eighth chromosome.

Spain

ASDID, the first Spanish association, entirely dedicated to families affected by genetic changes to the eighth chromosome. Ongoing research project.

United States

Project 8p, based in New York City, conducts scientific research and maintains a registry of patients with genetic changes to the eighth chromosome.

UK & The Republic Of Ireland

Extended community of families affected by genetic changes to the eighth chromosome, of which a mother is a spokesperson and educates the general public.

Czech Republic

8p Heros CZ, the first association in the Czech Republic, entirely dedicated to families affected by genetic changes to the eighth chromosome.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.