Project 8p Research Newsletter – March 2023

The Project 8p Two Year Research Plan, first published last year, will undergo regular reevaluation and revision as our research projects provide new insights into the disease, as technological advances are made, and as the wants and needs of 8p heroes and their caregivers evolve. Later this year, a new research segment on Assistive Technology will be added to the plan with the goal of partnering with early-stage companies developing augmentative devices and neural interfaces to evaluate and test new technologies that have the potential to improve the lives of 8p heroes in the near term. We hope you’ll share your thoughts on this new research segment as we work to formalize it in the coming months. 

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The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.