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New store items have arrived, shop for 8p before Rare Disease week!
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Dr. Yanning Zuo Presented with a $20,000 Research Grant from Uplifting Athletes and the Project 8p Foundation

After two years of treatment with Elevidys, we are seeing multiple sustained benefits in the day-to-day lives of these young boys, all of which are indicators of its disease modifying potential in Duchenne,” said Levi Garraway, M.D., Ph.D., Roche’s Chief Medical Officer and Head of Global Product Development.
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2024 Project 8p Research Recap

I probably wasn’t the only person who was roped into a fair share of board games this holiday season. I was reintroduced to the classic whodunnit mystery game Clue by my older son.
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8p Health Canvas Explainer

In the Summer Research Newsletter published last week, I previewed the agenda and invited speakers for the 2024 8p Family & Science Conference, which kicks off today in Denver Colorado.
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Project 8p Research Newsletter – Summer 2024

The last time 8p families and researchers gathered together to break bread over science and shared lived experience was at the Moving Mountains conference in Denver Colorado in the Summer of 2021, two years after Project 8p was launched by Bina Maniar.
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Project 8p Research Newsletter – May 2024

Project 8p funded Professor Warmflash’s lab to study early fetal development in the lab using induced pluripotent stem cells (iPSCs) derived from 8p heroes.
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Integrated Biosciences Partners with Project 8p Foundation to Pioneer a New Path to Groundbreaking Treatments for Chromosomal Disorders

Partnership expands Integrated Biosciences’ partnerships in translational research and Project 8p Foundation’s footprint in therapeutic development
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The elusive 8p minimal critical region

Megabase alterations to the short arm of chromosome 8 are a plot to overthrow the organism, not the actions of a lone wolf.
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Project 8p Research Newsletter – April 2024

Project 8p initiated a collaboration with Dr Francesca Telese at the UCSD to tackle that thorny question.
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The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.