News ArticlesFox 5 NY – Family of girl with rare chromosomal disorder creates nonprofit to help research conditionJune 28, 2019NEW YORK (FOX 5 NY) – Karina Shah, 6, has spent her life living with a Chromosome 8p abnormality, a rare…Read More
News ArticlesFox 5 NY – Brave girl inspires research on rare chromosomal disorder | The Big IdeaJune 17, 2019Article By Teresa Priolo, FOX 5 NY Karina Shah, 6, has a song in her heart and a beat in…Read More
News ArticlesPharmafile – Living with a Rare Chromosome DisorderApril 11, 2019Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80…Read More
News ArticlesPeninsula News – Rolling Hills Estates mom seeks cure for 6-year-old with rare disorder that afflicts just 1 in 65 in the worldMarch 13, 2019Article By Bradley Bermont The first sign of trouble was her newborn’s faint cry. “In my mind, I’m thinking that’s…Read More
News ArticlesRomper – Denise Richards Opens Up About Raising Her Daughter With Special Needs & It’s Not Always EasyFebruary 6, 2019Article By Christina Montoya Fiedler Many people know Denise Richards from her rocky relationship with actor Charlie Sheen. For a…Read More
News ArticlesEvening Times – Jeans for Genes provides their help to unique HannahSeptember 15, 2015JEANS for Genes Day on September 18 will raise vital funds for children with genetic disorders in the UK. And…Read More