Fox 5 NY – Brave girl inspires research on rare chromosomal disorder | The Big Idea
Article By Teresa Priolo, FOX 5 NY Karina Shah, 6, has a song in her heart and a beat in…
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Pharmafile – Living with a Rare Chromosome Disorder
Rebecca Pender’s daughter Hannah lives with the ultra-rare condition Inv Dup Del 8p, a genetic arrangement that affects just 80…
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Peninsula News – Rolling Hills Estates mom seeks cure for 6-year-old with rare disorder that afflicts just 1 in 65 in the world
Article By Bradley Bermont The first sign of trouble was her newborn’s faint cry. “In my mind, I’m thinking that’s…
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Romper – Denise Richards Opens Up About Raising Her Daughter With Special Needs & It’s Not Always Easy
Article By Christina Montoya Fiedler Many people know Denise Richards from her rocky relationship with actor Charlie Sheen. For a…
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Evening Times – Jeans for Genes provides their help to unique Hannah
JEANS for Genes Day on September 18 will raise vital funds for children with genetic disorders in the UK. And…
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Global Genes – Ace’s Adventure with a Rare Deletion on Chromosome 8
Just by his smile, everybody knows our beautiful two year old son Aaron, or as we call him, our Ace. He’s…
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