RICHIE’S STORY

RICHIE’S STORY Richie’s story has so many moving parts. He has affected so many people and if you asked all of us close to him to write this, you would…

PROJECT 8p HOLIDAY GIFT GUIDE

If holiday shopping is on your mind, then we have a fabulous resource for you! I don’t know about you, but shopping for my 8p hero has sometimes stumped me…

GROWING WITH THE GIFT OF SHARING

GROWING WITH THE GIFT OF SHARING Story sharing is such a valuable way to share common experiences, learn, and develop, and can also be a very cathartic way to…

PROJECT 8P IS A MEMBER OF COMBINEDBRAIN

Project 8p is a member of COMBINEDbrain a non-profit consortium of 25 patient-advocacy groups, each representing a different rare genetic neurodevelopmental disorder. COMBINEDBrain’s mission is to speed clinical trial readiness…

TRAVEL TIPS FOR PARENTS WITH SPECIAL NEEDS

Travel can be a stressful experience. This can be especially true when traveling with a special needs child. My husband, two kids, and I are a military family; we live…

GOOGLE DOODLE KIDS COMPETITION

My sister is 5 years old and she can’t walk or talk but she tries so hard to. She has different therapists that come home to help her and she…

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.