GOOGLE DOODLE KIDS COMPETITION

My sister is 5 years old and she can’t walk or talk but she tries so hard to.  She has different therapists that come home to help her and she only gets a 15 minute break.  She uses many tools and toys, like a walker (G), baby at bed time (O) cards to help her talk and understand, her talker app (O) and cards, a whispermaphone to hear sounds (g), a flute and talk tools and her eye patches glasses to help her make sounds and see better (L), and a picture binder for communicating and chewy tubes to help her bite stronger for eating (E).

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Even with all of this, she still keeps smiling and hugging.  My sister is awesome and inspires everyone!

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.