Chromosome 8P

A session for communication and collaboration on the topic of Planning for the Future and 8p Adulthood! This is a parent/caregiver only event. It will not be recorded. Please register in advance.

After registering, you will receive a confirmation email containing information about joining the meeting.

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Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible

The Project 8p Foundation (Project 8p) was created in 2018 to:

Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.

Chromosome 8P

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SHARE WHAT WORKS – MAY 2022 PLANNING FOR THE FUTURE

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The Project 8p Foundation (Project 8p) was created in 2018 to:

The Project 8p Foundation (Project 8p) was created in 2018 to: