Share What Works

PROJECT 8P PRESENTS: MAYA DOYLE, PHD – PLANNING FOR THE FUTURE

Saturday, June 11th, 2022

11:00 am – 12:00 pm EST

Project 8p is excited to bring back Maya Doyle, Phd – a social work clinician and educator with three decades of experience as a social worker in pediatric medical settings. Join us for an educational Share What Works session on the topic of planning for the future.

Please register in advance – this allows us to send out reminder emails and ensures the event is not canceled due to low registration numbers.

After registering, you will receive a confirmation email containing information about joining the meeting.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.