Chromosome 8P
Families
Join Cause
About Us
Research
Providers

Chromosome 8P

For Families

  • 8 Steps for new member
  • My hero iniative
  • Welcome to Project 8p
  • Peer Parent Program
  • Family Friendly, Community Research Updates
  • Get Involved
  • Events
  • Newsroom
  • Shop

Resources

Symptom Navigator
Printable Pamphlet/Brochure
Care Guide
Clinic Visit
Local Assistance Program

Join Cause

About Us

Research

Resources

Research Substack
Join Monthly Round Tables
8p Registry & My Hero Initiative
Apply for Funding

Providers

  • neurogenetic multidisc clinic
  • TeleEcho Model for Professionals
  • Clinic Publications
Enroll My Hero
Donate
Enroll My Hero
Donate
About Us
Chromosome 8p
Families
Join The Cause
Researchers
Providers

Career Opportunities

Share What Works

Facebook-f Instagram Linkedin-in Youtube

FAMILIES AND 8P HEROES 18 AND ABOVE

Families and 8p Heroes 18 and Above

When: Wednesday, March 9th, 2022 – 7:30 pm EST

Caregivers to adult 8p heroes, this one is for you! A chance to communicate and collaborate about your journey as a caregiver/parent to an adult 8p hero. Rose-Anne Partridge, 8p mother, patient leadership board member, wellness professional and special needs advocate will help lead this discussion.

Please register in advance for this meeting:

Subscribe to Newsletter

Join The Cause

Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible

Facebook-f Instagram Linkedin Youtube
Copyright @ 2023 Project8p . All rights reserved.
Privacy Policy

Our Impact

Mission & Vision

Letter From The Founder

Alliances & Partners

Financials

Leadership Team

Career Opportunities

Meet The Heroes

8p Genetics

8p Symptoms

Chromosome 101

Rare Disease Facts

Care Tools

8 Steps For New Members

My Hero Initiative

Share What Works

Blog

Family Friendly Research Updates

Organ Tissue Donation

Events

Local Assistance Program

Take Action

News

Shop For 8p

Patient Navigator

Join The Cause

Project 8p Faster

Ways To Give

Donate Crypto

Deferred Gifts

Shop For 8p

Sponsors And Grantors

Researchers Roadmap

Join Roundtables

Commission On Novel Technologies
For 
Neurodevelopment CNVs

Publications

Research Opportunities

CNV Portal

News

Conferences

Apply For Funding

MultiDisciplinary Clinic

TeleEcho Model For Professionals

Clinic Publications

Patient Navigator

Enroll My Hero
Donate

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.