Welcome to the Project 8p Patient Navigator. This resource is designed to provide families, caregivers, and healthcare professionals with up-to-date information and recommendations on managing the health and well-being of individuals with chromosome 8p rearrangements. As our understanding of 8p conditions advances, this Navigator will continue to evolve, offering the latest insights, research, and best practices to support the 8p community.
The content in this Navigator is generated in part through research sponsored by Project 8p and through surveys collected as part of the chromosome 8p registry. We extend our heartfelt thanks to the families who have participated in these surveys—your contributions are helping to improve care and knowledge for all 8p heroes. We encourage others to complete surveys and be an active part of the community.
The Patient Navigator is intended to provide information on health conditions seen in 8p heroes, but it is not a substitute for professional medical care. The information presented in the Patient Navigator is designed to help families and caregivers better understand these conditions and to facilitate informed discussions with healthcare providers. Always consult with your physician or healthcare provider before making any medical decisions.
If you have any questions regarding the content of the Navigator or need assistance with its use, please reach out to engagement@project8p.org.
For medical care at the Colorado Multidisciplinary Clinic dedicated to 8p disorders, please contact Kaiti at Kaiti@project8p.org.
Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible
