PROJECT 8P MEMBER ON BBC RADIO SCOTLAND

Rebecca Pender, Project 8p Member, and Mother to her daughter, Hannah, was recently featured discussing her daughter’s diagnostic journey on BBC Radio Scotland’s John Beattie show.

“It was a very strange duplicitous moment where I fought for so long, I advocated so hard for her that something was wrong, I didn’t want to be right, but I was right…our lives would never be the same again and we would always need a level of input and a level of support.”
– Rebecca Pender

Listen to Feature Now

Rebecca Pender’s feature starts at 1:18 to 1:25

BBC RADIO SCOTLAND – JOHN BEATTIEE

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.