Just by his smile, everybody knows our beautiful two year old son Aaron, or as we call him, our Ace. He’s the light of our lives (as most children are to their parents–but we like to think he’s got an unusual glow about him)! As soon as you meet him, it’s pretty easy to see he is a happy kid, one who is always quick to give a cheesy smile and ready to charm anyone almost instantly. He is unique. We didn’t realize just how unique until recently when we learned Aaron has a rare deletion on chromosome 8.
We were told that there is no one in the genome database with the same deletion as Aaron which, from what we have read, can be typical for these rare situations. We are fortunate to have doctors that have monitored a couple of things that were medically “off” when Aaron was born, even if they weren’t causing a problem (dilated right kidney and coloboma, for example).