News

January 26,2023

The Journey Beyond a Diagnosis

Wednesday, September 21st, 2022 Lisa Brideson-Glynn is a Speech..

March 5,2022

Columbia Lacrosse Signs 8p Hero Karina Shah Through Team IMPACT

Team IMPACT is a national non-profit organization, has developed a uniq..

February 15,2022

8p hero believed to be the only child in the world with a combination of rare diseases.

Hannah Pender is believed to be the only child in the world with a…

March 9,2021

Patient-Led Communities Accelerating Rare Disease Research

Source Article The Rare As One Project, supports 30 patient-led..

May 13,2022

Chan Zuckerberg Initiative to fund 30 patient groups, aiming to build a model for tackling..

Click here to view the whole article on Stat News Click here to view..

January 22,2022

Project 8p Member on BBC Radio Scotland

Rebecca Pender, Project 8p Member, and Mother to her daughter, Hann..

February 15,2022

8p hero believed to be the only child in the world with a combination of rare diseases.

Hannah Pender is believed to be the only child in the world with a…

March 9,2021

Patient-Led Communities Accelerating Rare Disease Research

Source Article The Rare As One Project, supports 30 patient-led..

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.