Mission, Vision & Core Values

Mission

To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow.

We invite scientists, medical experts, rare disease organizations, and industry to collaborate with us to increase our chances for a healthy life.  

A building block of positive change is to make available  knowledge and resources and foster economies of scale. 

The possibilities of genomic medicine are only achievable with a strong community who advocates together and in turn can influence and generate involvement from scientists, researchers, biotech, pharma, and healthcare industries.

Vision

Cure genetic brain disorders with novel technologies that are accessible to all.

Core Values

We Disrupt

We challenge the status quo for scalable impact

We Race

We race against time

We Persevere

We are resilient - inspired by 8p heroes who never stop persevering

We Connect

We bridge diverse heroes to one community that stands for equity in health and science

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.