Career Opportunities

Scientific Program Manager

Job Type:

Scientific Program Manager

Location:

Remote; preferably based in greater Boston area to facilitate regular in-person meetings

Salary:

The position is compensated with a base salary that will be commensurate with the candidate's experience.

About Project 8p Foundation:

Project 8p Foundation is a nonprofit biotech organization established in late 2018. We are researching 8p disorders to find treatment options and give meaningful answers to those affected and their families. We are patient-led and open science. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment. Project 8p’s organizational philosophy is premised on stakeholders that are patient-centered for collaboration, transparency, and resource sharing to fulfill the mission. Project 8p is committed to translating research into medicines and aspires to scale learnings to other complex neurological chromosome diseases.

The Role:

We are seeking a highly motivated candidate with experience in leading multi-faceted research programs in academia or industry to accelerate modalities (drug repurposing, gene therapies, etc). This individual will have the unique opportunity to devise high-level scientific strategies, plan and implement specific projects, and communicate results to all 8p stakeholders including families.

Responsibilities:

Research Program Innovation and Cultivation:

Continue to cultivate and grow our research programs and annually work with leadership to update the Research Roadmap.

Cultivate new program areas across modalities such as drug repurposing, gene therapies, and preclinical modeling.

Evaluate and refine scientific priorities based on emerging data and community needs.

Engagement and Partnership Development:

Internally: Regularly meet with the Executive Director to provide updates and insights into research initiatives. Collaborate with program project directors; present research developments to the Board; facilitate and design plan for monthly research roundtables; host interactive family community updates

Externally: Scientific Advisory Excellence: Seek out science advisors, biotech visionaries, nonprofit champions, and creative minds. Collaborate with the Executive Director and board to facilitate strategic partnerships across academia, biotech, and advocacy.

Lead the charge in research-oriented meetings and dynamic webinars relevant to the field that drive innovation, collaboration, and transformative change in the field. Foster strategic partnerships within the rare disease arena, travel to patient advocacy events, speaker programs and conferences. Design initiatives that inspire families to actively participate in research.

Present research updates at conferences, community town halls, and board meetings.

Scientific Communication & Storytelling:

Transform scientific breakthroughs into captivating narratives. Synthesize research in a way that engages, motivates and excites both internal and external audiences.

Lead the planning, agenda development, and content coordination for regular MSAB (Medical & Scientific Advisory Board) meetings, ensuring alignment with research milestones and strategic priorities

Strategic Leadership:

Grant Making and Evaluation: Identifying and soliciting new research projects and investigators, design of experiments and milestones, oversee existing and new program effectiveness and evaluate sponsored research projects. Establish and manage the Research Funding Announcement (RFA) process and research network of Principal Investigators (PIs).

Exhibit analytical prowess and strong project management skills. This includes budgeting and successful implementation of projects.

Fundraising:

Identification of appropriate grant fundraising opportunities in the research and science based fields. Assist with grant writing as appropriate.

Clinical Trial Readiness and Repurposed Trials:

Demonstrated expertise in clinical trial readiness, including protocol development, patient recruitment, and regulatory compliance.

Innovative Data Capture:

Proficiency in implementing innovative approaches, including video data capturing methods, to enhance data collection and analysis for research projects, ensuring a comprehensive understanding of the disease’s nuances.

Professional Qualifications:

Demonstrated ability to analyze complex scientific information, with quantitative and
qualitative analysis skills

Strong written, oral, and interpersonal communication skills, including ability to effectively
communicate scientific information to lay audiences

Strong organizational abilities including effective planning, prioritization, delegation,
program development and task facilitation

Good follow-through and the ability to work independently and with limited oversight and
direction

Familiarity with budget preparation, analysis, and strategic decision-making

A plus:

Creativity and personal dynamism

Mission driven individual who personally advocates for disabilities

Commercial orientation and success in business development. Experience in identifying and capitalizing on growth opportunities

Biotech experience

Education:

PhD or equivalent in the biological, biomedical, neurosciences, pharmacology or health sciences

Work Experience:

Highly motivated and interest in rare disease research and cellular biology of modeling disease

Prior experience with preclinical and clinical studies, drug development or pharmaceutical/biotech industry

A plus if experience working or interacting with a research-oriented or patient advocacy non profit organization

Transparent and high integrity leadership in a collaborative setting with advisory board, BOD, and team

Willing to travel 30-40%

Application Requirements:

All candidates should submit their resume along with other applicable requirements to Lauren@project8p.org.

Cover letter

Please explain what is compelling to work on a complex rare disease and why you are interested in a part-time position at a new rare disease foundation

Please provide a brief description of your research interests and short-term and long-term goals

Resume/CV

Writing sample(s)

Publication list, if applicable

1 long-form of scientific writing for scientific or medical community

1 short-form writing or presentation for general public, patients, caregivers

Why Join Us?

You’ll be part of a small, nimble, mission-driven team at the heart of a growing rare disease ecosystem. This is an opportunity to have real impact, build cross-sector partnerships, and push the field forward—while staying connected to the families who drive our work. We recognize that no candidate will meet every requirement. If you feel drawn to our mission and meet most of the criteria, we strongly encourage you to apply.

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Career Opportunities

Scientific Program Manager

Job Type:

Scientific Program Manager

Location:

Remote; preferably based in greater Boston area to facilitate regular in-person meetings

Salary:

The position is compensated with a base salary that will be commensurate with the candidate's experience.

About Project 8p Foundation:

The Role:

Responsibilities:

Professional Qualifications:

Education:

PhD or equivalent in the biological, biomedical, neurosciences, pharmacology or health sciences

Work Experience:

Application Requirements:

Why Join Us?

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The Project 8p Foundation (Project 8p) was created in 2018 to:

The Project 8p Foundation (Project 8p) was created in 2018 to: