Project 8p Executive Director

In addition to the onboarding materials provided you will be expected to take personal initiative to understand chromosome 8p disorders at a layperson’s level, as well as the current strategic and operating plan of the organization. You will be responsible for reaching the Fundraising target of $3.0 M in the first 12 months.

Leadership and Strategic Planning

• Partner with the CEO to provide strategic leadership to the organization.
• Maintain overall responsibility, accountability, and authority for the management of day-to-day operations for Project 8p and its programming with the support of staff and the Science Director.
• Develop and implement strategic plans to achieve Project 8p’s mission and goals.
• Foster a positive and collaborative organizational culture. Fundraising, Financial Management and Venture Philanthropy:
• Develop new and execute fundraising strategies to secure financial support for the organization.
• Manage the organization’s budget and financial resources effectively
• Seek and cultivate relationships with donors including but not limited to, individuals, foundations, and corporations.
• Structure creative in-kind partnerships or with equity to advance programs (I.e. venture philanthropy that includes high engagement, multi-year support and capacity building).
• Experience or willingness to learn and work with crypto donor models
• Oversee and leverage social media interactions with new or existing donors

Advocacy and Public Relations

• Advocate for the 8p community at local, national, and international levels.
• Build and maintain positive relationships with key stakeholders, including government agencies, patient groups, and healthcare organizations.
• Manage public relations, social media and communications to enhance the organization’s visibility and impact.

Organizational Development

• Recruit, lead, and develop a high-performing team.
• Implement effective human resources policies and procedures.
• Continuously assess and improve organizational effectiveness.

Board Relations and Governance

• Work closely with the Board of Directors to align organizational strategy with their vision and goals.
• Provide regular updates to the Board and engage them in key decision-making processes.
• Ensure compliance with legal and ethical standards.

Community Engagement and Education

• Engage with the 8p community to understand their needs and concerns.
• Develop and implement educational initiatives to raise awareness about 8p.
• Facilitate support groups and events to connect individuals affected by 8p.