Job Posts - Project8p

Job Post

Project 8p Employment Form

While we are a new organization looking to grow rapidly, we
strongly encourage all candidates to apply by contacting us about open positions.

JOB Title : Translational Research Director

Job Type : Part-time position average 20 hours/week. potential to evolve into a full-time.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : Remote; preferably based around NYC/tri-state area to facilitate regular in-person meetings

Job Responsibilities:

Project 8p is a new disease-specific patient-centric foundation launched to help individuals and families affected by chromosome 8p conditions. The mission of Project 8p is to discover treatments with an active translational research program and intelligent roadmap to empower well-being of a unified community today. Project 8p is the first and only organization focused on this rare disorder with a growing community of more than 350 families.

We are seeking a highly motivated candidate with experience in academic research or private sector in biotech, life sciences, or pharma to help accelerate basic science research with novel translational ways for therapeutic development (drug repurposing, gene therapies). This individual will have the unique opportunity to lead the scientific strategies with substantial autonomy but also collaborate with the Foundation’s leadership to plan and implement projects, highlight current progress and innovation in the scientific and clinical landscape relevant to the Foundation, and communicate with the Project 8p stakeholders.

While we are a new organization looking to grow rapidly, we strongly encourage all candidates to apply that may fit some criteria, if not all.

Job Responsibilities:

Demonstrate strong strategic, analytical, project management, and communication skills
Lead short and long term strategic planning, management of research programs and program implementation for the organization
Develop and maintain relationships with key opinion leaders in the scientific, HCP community, caregiver community, industry, and other organizations and entities to help fulfill the Foundation’s missions. This includes travel and presentations in patient advocacy events and meetings, speaker programs, conferences on relevant research programs and therapeutics
Create and manage a medical & scientific advisory board to implement strategic plan
Develop, implement, and manage RFA process and research network (PIs), and oversee program effectiveness and evaluate sponsored research projects
Develop strategic partnerships and experience in the rare disease space, with academia/researchers, industry, NIH/federal entities, patient groups and other stakeholders; support development of a strategic advisory commission for novel technologies for neurodevelopmental CNVs
Lead research-oriented meetings and webinars
Collaborate with the patient leadership board
Help guide the board on scientific issues and avenues for action and external funding sources
Identify eligible grants and draft applications with support of PIs
Evaluate and report to the Board on research program and effectiveness
Think big picture and creatively to generate new projects to advance the organization’s goals
Other duties as assigned by the Board of Directors

Professional Qualifications:

Demonstrated ability to analyze complex scientific information, with quantitative and qualitative analysis skills
Strong written, oral, and interpersonal communication skills, including ability to effectively communicate scientific information to lay audiences
Strong organizational abilities including effective planning, prioritization, delegation, program development and task facilitation
Good follow-through and the ability to work independently and with limited oversight and direction
Creativity and personal dynamism a plus
Familiarity with budget preparation, analysis, and strategic decision-making a plus

Education:

PhD or equivalent in the biological, biomedical, or health sciences
U.S. citizenship or permanent residency required

Work Experience:

Highly motivated and interest in rare disease research and cellular biology of modelling disease
Prior experience with preclinical and clinical studies, drug development or pharmaceutical/biotech industry
A plus if experience working or interacting with a research-oriented or patient advocacy non profit organization a plus
Transparent and high integrity leadership in a collaborative setting with advisory board, BOD, and team
Willing to travel for in-person meetings with scientists and relevant conferences

Application Requirements:

Cover letter

Please explain what is compelling to work on a complex rare disease and why you are interested in a part-time position at a new rare disease foundation
Please provide a brief description of your research interests and short-term and long-term goals
Resume/CV

Writing sample(s)

Publication list, if applicable
1 long-form of scientific writing for scientific or medical community
1 short-form writing or presentation for general public, patients, caregivers

Please email inquiries or submissions to : Info@project8p.org

JOB Title : Communications and Social Media Manager

Headline : The Strategic Communications Specialist is a position dedicated to creating and optimizing relevant and timely content across all Project 8p communication channels including email campaigns, newsletters, social media sites and the website. It requires understanding of Project 8p, our mission, research, and patient support; as well as the ability to set targets, create KPI’s, and implement optimization strategies.

Job Type : Part-time contractor 15 hours per week with potential to evolve into a full-time position. 12 month minimum commitment.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : work remotely preferably NYC based.

About Project 8p Foundation

Project 8p Foundation is a nonprofit organization established to accelerate the discovery of treatments for chromosome 8p disorders with a translational research program and a standard of care to empower meaningful lives in a unified community today. Project 8p’s organizational philosophy is built around a strong ethos of stakeholders that are patient-centered supporting collaboration, transparency, and resource sharing across related disorders to achieve the mission. Project 8p is committed to maximizing every opportunity and aspire towards scalability across other rare and broader neurological diseases and to develop programs of excellence. The recent launch of a newly established Project 8p led Commission on Novel Technologies for Neurodevelopmental Copy Number Variants is a collaborative initiative generating excitement and great promise in the scientific community.

About Project 8p Foundation

Implementing best practices for social media influencing and impact to support organization’s mission and goals
Creating content for social impact storytelling
Running month end reports with observations and recommendations for growth
Writing social media posts daily
Liking relevant posts and increasing new organic followers and increasing engagement
Engaging influencers
Monthly blog based on audience need and Patient Leadership Board (PLB) recommendations
Researching similar nonprofits for inspiration
Monitoring similar nonprofits including umbrella organizations such as NORD and Unique for content sharing
Creation of content calendar with strategic posts
Creative voice in all content

Professional Qualifications:

Fluent with the latest trends and best practices in social media
Experience with design programs like CANVA, Photoshop or similar
Organization and problem-solving skills
Detail oriented and strong time management skills
Flexible and adaptable to sudden changes in assignment and responsibilities
Work well under pressure
Strong oral and written communications skill with ability to articulate to all levels

Experience:

2 years experience in social media

Education:

Degree in communications, journalism, business marketing, or equivalent. Understanding and regular usage of all social media platforms. This position requires a high degree of attention to detail.

U.S. citizenship or permanent residency required

Submissions:

Resume/CV
Writing sample(s)

Probationary Period

A three month Probationary Period will apply to this role. During this time you will receive advice, training and guidance to help you become familiar with, and competent in, performing the work you have been appointed to do. The appointment is subject to the satisfactory completion of the Probationary Period which itself is subject to termination during any stage.

Privacy

You are required to observe and uphold all of the Company’s privacy policies and procedures as implemented or varied from time to time.

Collection, storage, access to and dissemination of employee personal information will be in accordance with privacy legislation.

Confidentiality of Information

During your employment you may become aware of information relating to the business of Project 8p, including but not limited to client lists, trade secrets, client details and pricing structures.

Confidential information, including client lists, trade secrets, pricing structures and any and all documents created by you in the course of your employment remain the sole property Project 8p. You shall not, either during or after your employment, without the prior consent of Project 8p, directly or indirectly divulge to any person or use the confidential information for your own or another’s benefit.

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Job Post

Project 8p Employment Form

JOB Title : Translational Research Director

Job Type : Part-time position average 20 hours/week. potential to evolve into a full-time.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : Remote; preferably based around NYC/tri-state area to facilitate regular in-person meetings

Job Responsibilities:

Job Responsibilities:

Professional Qualifications:

Education:

Work Experience:

Application Requirements:

Please email inquiries or submissions to : Info@project8p.org

JOB Title : Communications and Social Media Manager

Job Type : Part-time contractor 15 hours per week with potential to evolve into a full-time position. 12 month minimum commitment.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : work remotely preferably NYC based.

About Project 8p Foundation

About Project 8p Foundation

Professional Qualifications:

Experience:

Education:

U.S. citizenship or permanent residency required

Submissions:

Probationary Period

Privacy

Confidentiality of Information

Project 8p Employment Form

Confidentiality of Information

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The Project 8p Foundation (Project 8p) was created in 2018 to:

The Project 8p Foundation (Project 8p) was created in 2018 to: