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Project 8p Employment Form

While we are a new organization looking to grow rapidly, we
strongly encourage all candidates to apply by contacting us about open positions.

JOB Title : Translational Research Director

Job Type : Part-time position average 20 hours/week. potential to evolve into a full-time.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : Remote; preferably based around NYC/tri-state area to facilitate regular in-person meetings

Job Responsibilities:

Project 8p is a new disease-specific patient-centric foundation launched to help individuals and families affected by chromosome 8p conditions. The mission of Project 8p is to discover treatments with an active translational research program and intelligent roadmap to empower well-being of a unified community today. Project 8p is the first and only organization focused on this rare disorder with a growing community of more than 350 families.

We are seeking a highly motivated candidate with experience in academic research or private sector in biotech, life sciences, or pharma to help accelerate basic science research with novel translational ways for therapeutic development (drug repurposing, gene therapies). This individual will have the unique opportunity to lead the scientific strategies with substantial autonomy but also collaborate with the Foundation’s leadership to plan and implement projects, highlight current progress and innovation in the scientific and clinical landscape relevant to the Foundation, and communicate with the Project 8p stakeholders.

While we are a new organization looking to grow rapidly, we strongly encourage all candidates to apply that may fit some criteria, if not all.

Job Responsibilities:

  • Demonstrate strong strategic, analytical, project management, and communication skills

  • Lead short and long term strategic planning, management of research programs and program implementation for the organization

  • Develop and maintain relationships with key opinion leaders in the scientific, HCP community, caregiver community, industry, and other organizations and entities to help fulfill the Foundation’s missions. This includes travel and presentations in patient advocacy events and meetings, speaker programs, conferences on relevant research programs and therapeutics

  • Create and manage a medical & scientific advisory board to implement strategic plan

  • Develop, implement, and manage RFA process and research network (PIs), and oversee program effectiveness and evaluate sponsored research projects

  • Develop strategic partnerships and experience in the rare disease space, with academia/researchers, industry, NIH/federal entities, patient groups and other stakeholders; support development of a strategic advisory commission for novel technologies for neurodevelopmental CNVs

  • Lead research-oriented meetings and webinars

  • Collaborate with the patient leadership board

  • Help guide the board on scientific issues and avenues for action and external funding sources
    Identify eligible grants and draft applications with support of PIs

  • Evaluate and report to the Board on research program and effectiveness

  • Think big picture and creatively to generate new projects to advance the organization’s goals

  • Other duties as assigned by the Board of Directors

Professional Qualifications:

  • Demonstrated ability to analyze complex scientific information, with quantitative and qualitative analysis skills

  • Strong written, oral, and interpersonal communication skills, including ability to effectively communicate scientific information to lay audiences

  • Strong organizational abilities including effective planning, prioritization, delegation, program development and task facilitation

  • Good follow-through and the ability to work independently and with limited oversight and direction

  • Creativity and personal dynamism a plus

  • Familiarity with budget preparation, analysis, and strategic decision-making a plus


  • PhD or equivalent in the biological, biomedical, or health sciences

  • U.S. citizenship or permanent residency required

Work Experience:

  • Highly motivated and interest in rare disease research and cellular biology of modelling disease

  • Prior experience with preclinical and clinical studies, drug development or pharmaceutical/biotech industry

  • A plus if experience working or interacting with a research-oriented or patient advocacy non profit organization a plus

  • Transparent and high integrity leadership in a collaborative setting with advisory board, BOD, and team

  • Willing to travel for in-person meetings with scientists and relevant conferences

Application Requirements:

Cover letter

  • Please explain what is compelling to work on a complex rare disease and why you are interested in a part-time position at a new rare disease foundation
  • Please provide a brief description of your research interests and short-term and long-term goals

  • Resume/CV


Writing sample(s)

  • Publication list, if applicable
  • 1 long-form of scientific writing for scientific or medical community
  • 1 short-form writing or presentation for general public, patients, caregivers

Please email inquiries or submissions to :

JOB Title : Communications and Social Media Manager

Headline : The Strategic Communications Specialist is a position dedicated to creating and optimizing relevant and timely content across all Project 8p communication channels including email campaigns, newsletters, social media sites and the website. It requires understanding of Project 8p, our mission, research, and patient support; as well as the ability to set targets, create KPI’s, and implement optimization strategies.

Job Type : Part-time contractor 15 hours per week with potential to evolve into a full-time position. 12 month minimum commitment.

Salary : The position is compensated with a base salary that will be commensurate with the candidate’s experience.

Location : work remotely preferably NYC based.

About Project 8p Foundation

Project 8p Foundation is a nonprofit organization established to accelerate the discovery of treatments for chromosome 8p disorders with a translational research program and a standard of care to empower meaningful lives in a unified community today. Project 8p’s organizational philosophy is built around a strong ethos of stakeholders that are patient-centered supporting collaboration, transparency, and resource sharing across related disorders to achieve the mission. Project 8p is committed to maximizing every opportunity and aspire towards scalability across other rare and broader neurological diseases and to develop programs of excellence. The recent launch of a newly established Project 8p led Commission on Novel Technologies for Neurodevelopmental Copy Number Variants is a collaborative initiative generating excitement and great promise in the scientific community.

About Project 8p Foundation

  • Implementing best practices for social media influencing and impact to support organization’s mission and goals

  • Creating content for social impact storytelling

  • Running month end reports with observations and recommendations for growth

  • Writing social media posts daily

  • Liking relevant posts and increasing new organic followers and increasing engagement

  • Engaging influencers

  • Monthly blog based on audience need and Patient Leadership Board (PLB) recommendations

  • Researching similar nonprofits for inspiration

  • Monitoring similar nonprofits including umbrella organizations such as NORD and Unique for content sharing

  • Creation of content calendar with strategic posts

  • Creative voice in all content

Professional Qualifications:

  • Fluent with the latest trends and best practices in social media

  • Experience with design programs like CANVA, Photoshop or similar

  • Organization and problem-solving skills

  • Detail oriented and strong time management skills

  • Flexible and adaptable to sudden changes in assignment and responsibilities

  • Work well under pressure

  • Strong oral and written communications skill with ability to articulate to all levels


  • 2 years experience in social media


  • Degree in communications, journalism, business marketing, or equivalent. Understanding and regular usage of all social media platforms. This position requires a high degree of attention to detail.

U.S. citizenship or permanent residency required


  • Resume/CV

  • Writing sample(s)

Probationary Period

A three month Probationary Period will apply to this role. During this time you will receive advice, training and guidance to help you become familiar with, and competent in, performing the work you have been appointed to do. The appointment is subject to the satisfactory completion of the Probationary Period which itself is subject to termination during any stage.


You are required to observe and uphold all of the Company’s privacy policies and procedures as implemented or varied from time to time.

Collection, storage, access to and dissemination of employee personal information will be in accordance with privacy legislation.

Confidentiality of Information

During your employment you may become aware of information relating to the business of Project 8p, including but not limited to client lists, trade secrets, client details and pricing structures.

Confidential information, including client lists, trade secrets, pricing structures and any and all documents created by you in the course of your employment remain the sole property Project 8p. You shall not, either during or after your employment, without the prior consent of Project 8p, directly or indirectly divulge to any person or use the confidential information for your own or another’s benefit.

Project 8p Employment Form

Confidentiality of Information

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.