Project 8p is a partner or member of many of these organizations below. They are useful sources of information for patients, families, and the scientific community. Please contact us and we can help you navigate these resources and Project 8p’s relationships with these affiliates.
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Printable Tri-Fold Information to share with your family members, doctors, donors, any interested parties

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View the Community Voice Report by
Trend

Chromosome Kids Like Me

Authored by 8p Parent Caregiver, Annette Fournier

Project 8p Social Media Links

8p International Affiliates - France families

Association La Maison 8p

State Insurance Resource Guide January 2022

View PDF

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.