Helpful Resource
Project 8p is a partner or member of many of these organizations below. They are useful sources of information for patients, families, and the scientific
community. Please contact us and we can help you navigate these resources and Project 8p’s relationships with these affiliates.
Printable Tri-Fold Information to share with your family members, doctors, donors, any interested parties
View the Community Voice Report by
Trend
Chromosome Kids Like Me
Authored by 8p Parent Caregiver, Annette Fournier
Project 8p Social Media Links
- Facebook Public Page – Project 8p, a rare chromosome 8p disorder – please follow for updated news on Project 8p and rare diseases.
- Facebook closed group for patient families – request to be a member. 8p deletion/duplication research group
- Facebook closed group for patient families and related parties – request to be a member. Chromosome 8p Disorder Parents & Therapists
- Others: search for Chromosome 8 in facebook and ask to join relevant associated groups
- Twitter @chromosome8p – follow us
- Instagram @chromosome8p – follow us
- Youtube Channel Project 8p Foundation Youtube
- Follow and Add #project8p and #chromosome8p to help raise awareness and advocate for this rare disorder
