Education and IEP Saturday, February 26th, at 12:00 pm ET Family roundtable discussing education and IEPs.
Celebrate August 8th annually for Chromosome 8p Day and help us raise awareness and Take Action
Join Project 8p Foundation every August for our annual 8,000 Steps for 8p. An awareness and fundraising event to accelerate treatments for rare Chromosome 8p Disorders. Walk, run, stride, or ride in honor of 8p heroes around the globe.
All funds raised support Project 8p’s mission to empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow.
The third annual Twig and Berries fundraiser for Project 8p. Twig and Berries was originally created by John McGann Sr., more lovingly known as Ben’s Papa, several years ago. The tradition has since been carried on by Matt, Ben’s Dad, and his friends. Project 8p and our family: At the age of one, our son, Ben, was diagnosed with a rare genetic condition called Chromosome 8p Inversion Duplication/Deletion.
After receiving Ben’s diagnosis we were at a loss, as there was little to no information about this diagnosis and no standard course of treatment. Then we found Project 8p, they have given our family a lifeline. Project 8p is leading the charge on researching 8p disorders to find treatment options and give meaningful answers to those affected. They have created an amazing active global community. We appreciate you joining us in supporting our sweet Ben and all the other 8p Heroes by raising funds for this incredible organization.
Education and IEP Saturday, February 26th, at 12:00 pm ET Family roundtable discussing education and IEPs.
An opportunity to connect and collaborate with your fellow 8p caregivers.
Third Monday of every month
Dr. Mona Delahooke Live Presentation & Q&A November 5th at 5:00 PM PT Dr. Mona Delahooke, pediatric psychologist, expert on…
Join us Saturday, February 6th from 11:00 AM – 12:30 PM EST Please join us for the opportunity to network…
Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible