Project 8p Family and Science Conference 2024

Families may apply for Travel Stipend (Scroll below)

Attendee Perspectives

“It was a weekend filled with learning new information about the science of 8p disorders and the experiments taking place, making connections with families, and fostering hope for all parties involved.”

“At the conference you will make & deepen lifelong friendships & supports, you will learn about the amazing research happening – both for future generations and for our kiddos, you’ll get an opportunity to be a part of that research, all while in person in one place together. There’s nothing else like it.”

“I am so happy I chose to attend my first conference. Beyond the important information you learn about your child, you gain connection ls with families who understand your experience without much explanation. You also get the opportunity to see the big picture, the reason why this organization does all of this work…the kids. These 8p heros instantly steal your heart and I can’t imagine not going year after year now!”

“Amazingly comprehensive. Not only is there the opportunity to meet other families, the opportunity to learn about on-going research, common findings among 8p heroes, and ability to meet with dedicated specialists make this a truly enriching and worthwhile experience.”

“I feel like this conference is a must. I feel so fortunate to have learned about it right after our diagnosis. It gave us the information we wanted, the support and love that we so desperately needed, and helped guide us on our next steps in this journey.”

Registration

Registration includes most meals and an evening out at Top Golf.

Why attend the conference?

Sessions will be held on the latest research, treatment and therapies, with views from clinicians, providers and parents. We also hope to foster a sense of camaraderie and understanding. Many families feel that this is the one time when they don’t have to explain their child and have a chance to meet other parents in similar situations. There will be on-site opportunities to participate in research and meeting 8p clinicians.

Frequently Asked Questions

How do I book the hotel?

Hotel: Hyatt Regency Denver Tech Center - rates secured at $169 + tax per night

After you register for an in-person ticket you will be given a link to book your hotel at the conference’s discounted price.

Who can attend the 8p Conference?

Anyone who has an interest in 8p disorders can attend the conference. At past conferences we’ve had families with an 8p hero, related adults, parents, kids, grandparents, aunts, uncles, and friends. Also health and education professionals such as doctors, teachers, physical therapists, occupational therapists, speech and language therapists, behavioral therapists and care providers have attended our past conferences. This article mentions your favorite at super low prices. Choose from same-day delivery, drive-up delivery or order pickup.

Can shirt orders be cancelled?

No. All conference shirts are final sale.

Are there shuttle to and from the airport to the hotel?

There is no hotel transportation available, but the opportunity to rent a car, call a taxi or call for an Uber/Lyft are other options.

Can we book a hotel stay outside of our Conference room block?

Yes. BUT.. we highly encourage you to book within the block. It’s a great rate and if you book outside the block rate with any other business, we cannot guarantee any insurance coverage or refund. It will not be under the conference contract. Booking under block rate will help us secure the minimum numbers of rooms blocked to keep cost down for all.

Will there be a virtual ticket option?

Unfortunately, due to the interactive nature of our agenda, we will not be providing a virtual ticket option this year. We will record and share sessions as applicable.

Will childcare be provided at the conference?

Childcare services will not be provided. However, there will be a designated children’s room accessible to 8p Heros, siblings, and other children attending the conference. Children who attend the children’s room must be accompanied by an adult.

Financial Support for Conference

Eligibility: Travel Stipend are available to families traveling and participating in the Project 8p Scientific and Family Conference on July 31st through August 3, 2024.
Parameters: Families will be reimbursed up to $599.00 per family.
Application deadline is May 1st, 2024
Direct questions to Kaiti Syverson at kaiti@project8p.org

Clinic visits available at Children’s Hospital Colorado

July 31st and Aug 2nd We have limited clinic visit openings available to families who have limited access to appropriate medical care for their child’s needs. The purpose of these clinic visits would be to guide specific medical care concerns and work with your local physicians. To learn more or schedule an appointment, contact our Patient Engagement Manager, Kaiti Syverson.

Become a Sponsor

Your support has immediate impact and is true to our 8p mantra:
Together Towards Treatment
Direct Interest to Bina@project8p.org

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.