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Open Board of Director Position:

Filled Positions:

Job Title: Translational Research Director

Job Type: Part-time position average 20 hours/week. potential to evolve into a full-time.

Salary: The position is compensated with a base salary that will be commensurate with the candidate’s experience. 

Location: Remote; preferably based around NYC/tri-state area to facilitate regular in-person meetings

Job Responsibilities:

Project 8p is a new disease-specific patient-centric foundation launched to help individuals and families affected by chromosome 8p conditions. The mission of Project 8p is to discover treatments with an active translational research program and intelligent roadmap to empower well-being of a unified community today. Project 8p is the first and only organization focused on this rare disorder with a growing community of more than 350 families. 

We are seeking a highly motivated candidate with experience in academic research or private sector in biotech, life sciences, or pharma to help accelerate basic science research with novel translational ways for therapeutic development (drug repurposing, gene therapies). This individual will have the unique opportunity to lead the scientific strategies with substantial autonomy but also collaborate with the Foundation’s leadership to plan and implement projects, highlight current progress and innovation in the scientific and clinical landscape relevant to the Foundation, and communicate with the Project 8p stakeholders. 

While we are a new organization looking to grow rapidly, we strongly encourage all candidates to apply that may fit some criteria, if not all. 

Responsibilities:

• Demonstrate strong strategic, analytical, project management, and communication skills
• Lead short and long term strategic planning, management of research programs and program implementation for the organization
• Develop and maintain relationships with key opinion leaders in the scientific, HCP community, caregiver community, industry, and other organizations and entities to help fulfill the Foundation’s missions. This includes travel and presentations in patient advocacy events and meetings, speaker programs, conferences on relevant research programs and therapeutics 
• Create and manage a medical & scientific advisory board to implement strategic plan
• Develop, implement, and manage RFA process and research network (PIs), and oversee program effectiveness and evaluate sponsored research projects 
• Develop strategic partnerships and experience in the rare disease space, with academia/researchers, industry, NIH/federal entities, patient groups and other stakeholders; support development of a strategic advisory commission for novel technologies for neurodevelopmental CNVs
• Lead research-oriented meetings and webinars 
• Collaborate with the patient leadership board
• Help guide the board on scientific issues and avenues for action and external funding sources
  • Identify eligible grants and draft applications with support of PIs
• Evaluate and report to the Board on research program and effectiveness
• Think big picture and creatively to generate new projects to advance the organization’s goals
• Other duties as assigned by the Board of Directors

Professional Qualifications:

• Demonstrated ability to analyze complex scientific information, with quantitative and qualitative analysis skills
• Strong written, oral, and interpersonal communication skills, including ability to effectively communicate scientific information to lay audiences
• Strong organizational abilities including effective planning, prioritization, delegation, program development and task facilitation
• Good follow-through and the ability to work independently and with limited oversight and direction
• Creativity and personal dynamism a plus
• Familiarity with budget preparation, analysis, and strategic decision-making a plus

Education:

• PhD or equivalent in the biological, biomedical, or health sciences 
• U.S. citizenship or permanent residency required

Work Experience:

• Highly motivated and interest in rare disease research and cellular biology of modelling disease 
• Prior experience with preclinical and clinical studies, drug development or pharmaceutical/biotech industry 
• A plus if experience working or interacting with a research-oriented or patient advocacy non profit organization a plus
• Transparent and high integrity leadership in a collaborative setting with advisory board, BOD, and team
• Willing to travel for in-person meetings with scientists and relevant conferences

Application Requirements:

• Cover letter
  • Please explain what is compelling to work on a complex rare disease and why you are interested in a part-time position at a new rare disease foundation
  • Please provide a brief description of your research interests and short-term and long-term goals
• Resume/CV
• Writing sample(s) 
  • Publication list, if applicable
  • 1 long-form of scientific writing for scientific or medical community
  • 1 short-form writing or presentation for general public, patients, caregivers

Please email inquiries or submissions to info@project8p.org