September 9, 2025
Project 8p is opening our multi-omics natural history dataset—plus curated external control datasets for benchmarking—to accelerate discovery in neurodevelopmental rare disease.
Explore and analyze deeply phenotyped cohorts inside our analytics-ready workspace in the Onya Portal, a platform built in a mission driven way to foster collaboration and impact.
This Open Science Challenge invites you to explore de-identified data:
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Tackle analytical tracks including:
Top submissions will be showcased by Project 8p with monetary prizes and opportunities for future collaboration including joint publications.
More details to follow, register your interest now to be added to our email list and receive updates!
Get early updates, FAQ sessions, and preview access to the portal.
Participation requires acknowledgment and agreement to our data use terms, including a strict non-reidentification policy for genetic or clinical data. The Researcher Agreement will be sent to you by email after you complete registration.Â
Once the Onya Portal is live, you’ll be invited to:
Reach out anytime at Portal@project8p.org for clarifications or support.
We’ll also host an FAQ session in October. Invites to the FAQ session will be sent to all who register.Â
When will the data be available?
A preview version of the Onya Portal will go live in the fall of 2025, with tools to query and explore the dataset.
Is there a cost to participate?
No, participation is free. Just register, agree to the data use terms, and propose a project.
Can I publish or present the data?
Yes — we encourage publication and presentation! We have an acknowledgement statement required that will be sent in the confirmation materials after Open Science Challenge project submission.
What makes this challenge unique?
It centers patient-generated data in the most comprehensive 8p disorder datasets available—while aligning with FAIR and open science principles.
Includes cross-system data on:
We thank the 8p heroes, families, and clinicians whose contributions made this dataset possible. This initiative reflects Project 8p’s commitment to patient-centric research, open collaboration, and accelerated real impact.
Together Towards Treatment
🧬 Project 8p Foundation
Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible
