8 Steps For New Members
WELCOME TO PROJECT 8p
A warm welcome to the families of those affected by Chromosome 8p Rearrangements, or as we like to call them, 8p Heroes.
We are thankful to have you alongside us.
Here are 8 easy steps to start your Project 8p Journey:
1. Join the Cause
Join the Cause by filling out your information for our contact list. This is the best way to stay current on all Project 8p updates, including research, community support programs and important announcements.
2. Visit
Visit the Project 8p website. Learn about a chromosome 8p diagnosis, previous research publications, current research opportunities, meet our leadership team, community programs and more.
3. Follow
Follow our social media pages. Never miss an update by following all our social media channels
4. Meet
Meet our community support team by scheduling a New Family Orientation. Learn more about Project 8p and the opportunities for your family by visiting with one of our Patient Leadership Board Members.
5. Connect
Connect with other families through our private Facebook group and peer support program.
6. Share
Share your Hero’s story, by joining the My Hero Initiative. No one understands 8p heroes better than themselves and the ones who love them most. The My Hero Initiative gives families the opportunity to tell their 8p hero’s story and add their piece to the Chromosome 8p Puzzle.
7. Participate
Participate in our Community Programs. Monthly Research Roundtables, Community Research Updates, Virtual Caregiver Events and our popular Share What Works programs are a great way to get involved with the 8p community.
8. Volunteer
Volunteer with us. We are always looking for community members to strengthen our team. Whether it’s joining our Patient Leadership Board, serving on a committee, hosting a fundraiser, writing a blog, creating social media content or donating, your contribution helps us live our mantra: Together Towards Treatment.
