At Project 8p, we understand that receiving a Chromosome 8p diagnosis can be an emotional and overwhelming experience. Whether your journey is just beginning or you’ve been on this path for a while, please know — you are not alone.
Our community includes more than 500 families from around the world, all united by our shared mission: To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow.
Here are 8 easy steps to start your Project 8p Journey
This packet was created as a comprehensive guide to help answer your most important questions after receiving a diagnosis. It includes:
We encourage you to return to this packet often. You don’t need to absorb it all at once — it’s here for you whenever you’re ready.
Join the Cause by filling out your information for our contact list. This is the best way to stay current on all Project 8p updates, including research, community support programs and important announcements.
Visit the Project 8p website. Learn about a chromosome 8p diagnosis, previous research publications, current research opportunities, meet our leadership team, community programs and more.
Follow our social media pages. Never miss an update by following all our social media channels.
Meet our community support team by scheduling a New Family Orientation. Learn more about Project 8p and the opportunities for your family by visiting with one of our Patient Leadership Board Members.
Connect with other families through our private Facebook group and peer support program.
Share your Hero’s story, by joining the My Hero Initiative. No one understands 8p heroes better than themselves and the ones who love them most. The My Hero Initiative gives families the opportunity to tell their 8p hero’s story and add their piece to the Chromosome 8p Puzzle.
Participate in our Community Programs. Monthly Research Roundtables, Community Research Updates, Virtual Caregiver Events and our popular Share What Works programs are a great way to get involved with the 8p community.
Volunteer with us. We are always looking for community members to strengthen our team. Whether it’s joining our Patient Leadership Board, serving on a committee, hosting a fundraiser, writing a blog, creating social media content or donating, your contribution helps us live our mantra: Together Towards Treatment.
Contact us at engagement@project8p.org
Project 8p Foundation, 787 Seventh Avenue – 31st Floor, New York, NY 10019
Contact us at engagement@project8p.org
Project 8p Foundation, 787 Seventh Avenue – 31st Floor, New York, NY 10019
Project 8p Foundation is a registered 501(c)(3) charitable organization with EIN 83-2545342. All contributions are deemed tax-deductible
