2020 8P Virtual Retreat

2020 Project 8p Virtual Retreat

was held on August 8, 2020 at 12:00pm EST

It was our first Virtual Conference and a success! Over 120 people registered to share their experiences and learn from each other.

Visit our Youtube Channel for videos.

Keynote Speaker: Stephanie Decker

In March of 2012, a tornado ripped through the town of Henryville, Indiana. Stephanie Decker, a 37-year-old mother, found herself in a life-altering moment. As her house began to disintegrate around her, she shielded her two young children with her body. Her dream home fell in, crushing her legs, but because of her heroic actions, Stephanie’s children were amazingly unscathed. It was a miracle that she even survived and made it to the hospital. At that point, doctors determined that parts of both legs would need to be amputated.

Since the accident, Stephanie has been featured on: The Today Show, The Ellen DeGeneres Show, ABC World News Tonight as “Person of the Week,” USA Today, USA Weekend, and People Magazine. She was featured in Successful Meetings‘ list of Most Reliable Keynote Speakers who surpass expectations. She was also named as one of L’Oreal’s 2014 Women of Worth Honorees and nominated for the 2015 Betty Jane France Humanitarian Award for her foundation work.

Dr. Ehsan Yazdi, Director of Translational Research

Dr. Yazdi is eager to apply his expertise to Project 8p’s mission and provide strategic oversight on all research programs to help our 8p heroes. He is also is co-Founder and Chief Executive Officer of NomoCan Pharmaceuticals, a NYC-based oncology drug discovery & development company with assets in development for multiple cancer indications. As a geneticist and molecular biologist, he has 15 years of experience in the field of cancer biomarker discovery and therapeutics. Prior to starting NomoCan, he was an Assistant Professor and translational research director at the Division of Gynecologic Oncology, State University of New York, Downstate Medical Center. He has several issued and patents related to anti-cancer peptides and monoclonal antibodies. He is co-inventor of several anti-cancer peptides which are at various stages of development by other companies. His research has been recognized by various awards including “Outstanding Clinical Scholar” award from the AACR/GlaxoSmithKline as well as by the Robert Furchgott Society (Nobel Prize in Medicine, ’98). Dr. Yazdi received his Ph.D. in Cellular and Molecular Biology and M.P.H. in Health Policy and Management from SUNY Health Science Center- NY and his M.Sc. in Applied Genetics from University of Birmingham and Imperial College of London- U.K. His key areas of research include cancer genetics, molecular biology, and biomarker & therapeutic discovery and development.

Yoga Sessions brought to you by Lindsay Andretta

Lindsay is passionate about fostering the art of yoga in a safe and nurturing atmosphere in order to bring greater health, happiness and wellbeing into the lives of those in our community. She strives to share this knowledge to all ages in the spirit of healing, love, transformation, and service. Lindsay teaches a series of Vinyasa classes that vary in degree of power, flow, empowerment, and meditation.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.