2019 NYC 1ST-Ever Conference

1st Scientific & Family Conference in 2019

For the first time in 2019, Project 8p convened a conference on chromosome 8p disorders for researchers and families.  The goals of the conference helped to begin building a strong community of researchers and families and determine research and treatment priorities.

Thursday June 27, 2019

Welcome Dinner

Photo Gallery

Friday June 28, 2019

Photo Gallery

Conference Presentations and Videos

Saturday June 29, 2019

Photo Gallery

Conference Presentations and Videos

Archived – Event Information

Archived Information – June 27th – 29th, 2019

Begins with a welcome dinner on June 27th at 6 pm and full days on June 28th – 29th by 5 pm. Researchers are invited to attend all events.

  • Please note that for Sunday, June 30th we recommend families planning their own leisure activities. We will send out a list of “Fun things to do in NYC” with discount codes.
  • Local Guide for NYC visitors www.nycgo.com

Location :

Roy and Diana Vagelos Education Center, 104 Haven Avenue, NY, NY

Columbia University Irving Medical Center

  • the area is called Washington Heights
  • For more details on the venue, click here.

Please click here for Registration and Travel Stipend Application Details

  • Upon Completion of Registration, please also click the link for the required survey (will pop up after completion). It is important that we hear your voice and understand what you expect from the conference.
    *** For those unsure or will attend via live streaming from all over the world, please also complete this survey. https://www.surveymonkey.com/r/Project8p
    *** For 8p families, we suggest you request to join our closed private group on Facebook for current updates and ask questions about the event in this link: https://www.facebook.com/groups/project8presearch/
Agenda will be shared closer to the date of the conference.
Room Blocks are offered with two options. We recommend staying in NYC.
1.Hotel Beacon
2130 Broadway at 75th Street New York, New York 10023 https://www.beaconhotel.com -For reservations, call 212.787.1100 ext. 2, between 9:00 am and 6:00 pm EST Monday through Friday and mention the group name, “Project 8P” to receive the reduced rate.Guests may also email, at reservations@beaconhotel.com with Project 8P in the subject line.-$265 per night +tax-ADA rooms are available but limited (Only studio rooms available at $265 rate, suites are $315)-60 day cancellation policy -must book by April 29 -complimentary coffee -breakfast coupons available for Viand Cafe -refrigerator in room -complimentary WiFi
2.Homewood Suites by Hilton Edgewater, New Jersey
10 The Promenade Edgewater, NJ 07012 201-941-4700 Use the link for reservations or call 1-800-774-1500 and mention the Project 8P 2019 Room Block at this hotel. OR Go to Hilton.com or the app and type in the group code PRO. -$199 per night +tax -ADA rooms are available but limited -complimentary breakfast -refrigerator in room -complimentary WiFi -48 hour cancellation policy -must book by June 13** please note the hotel complimentary shuttle does not go to Manhattan. It can take up to 45min during rush hour to drive across the bridge. RUSH HOUR WILL EFFECT YOUR COMMUTE TO AND FROM COLUMBIA MEDICAL CENTER BOTH DAYS. Please plan on an extra hour or more each day to arrive on time for the conference.

NYC Transportation

Subway and Bus Trip Planner http://www.mta.info/nyct

NYC Wheelchair Accessible Information

Helpful Travel Links • http://web.mta.info/accessibility/ Access-A-Ride Transportation system for individuals with disabilities • http://www.accessibledispatch.com/ Wheelchair accessible Taxi Cabs
  • For Yellow Taxis/Cabs, call 311 and request 4 passenger wheelchair accessible cab if needed.


If you are staying at Hotel Beacon in NYC, there is no parking on site however there is a garage across the street. Carousel Parking Corp- Champion Parking 201 75th Street

If you are staying at Homewood Suites at Edgewater, there is free parking.

Columbia University Medical Center
*Valet parking at Milstein Hospital (~$30)
Call 212-304-1037 for information
*Self Parking at 115 Fort Washington Ave b/t 164th and 165th. (~$30). The garage is a 9min walk/0.4 mile. Call 212-305-4903 for information.

Sponsors we welcome you to request our media kit for you to get exposure at a rare disease conference and we thank you for supporting us.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.
  • Lead with knowledge from patients. Currently, there is no cure for 8p disorders, nor is there a standard course of treatment.

The Project 8p Foundation (Project 8p) was created in 2018 to:

  • Raise transformative funding for pioneering scientific research into treatments for a complex, rare disease involving 250+ affected genes on the short arm of the 8 th chromosome (8p). Rearrangements of these genes causes significant abnormalities to the entire neurological system, thus all organs and functions of the body– with variance in cognitive functions, gross motor skills, social development and other challenges during infancy, and throughout life;
  • Empower a unified community of 8p patients and their families so they can have meaningful lives today; and
  • Accelerate future treatments, not only for 8p, but potentially for other chromosome-wide diseases as well.