The purpose of this retreat is to provide time for us to hang out as families and get to know another one and to give families the opportunity to be seen at the Neurogenetic Multidisciplinary Clinic at Children’s Hospital of Colorado on August 4-5. This will be a relaxed event.  You can join in for as many of these events as you wish.  Hotels, flights and transportation will be booked independently (see local hotel options below).  Project 8p is working to bring the group daytime events and dinners/brunch to you free of charge.