Chromosome 8p Registry & Biorepository
“Data sharing is essential for expedited translation of research results into knowledge, products, and procedures to improve human health. ”
— National Institute of Health
“Together Towards Treatment”
Annual 2022 Update or Registry 2.0. As this study is to better understand the disease over time, it requires improvements, updates to the protocol, and reconsenting. This is intentional to be certain that you understand participation on an ongoing basis and review your information to ensure it is correct and not out of date.
Chromosome 8p Registry: A Global Retrospective and Prospective Study of Affected Individuals with Chromosome 8p Rearrangements, NB200051, Project 8p IRB Protocol (04-12-2022), Version 5.0
PRINCIPAL INVESTIGATOR: Bina Shah, MBA
Project 8p Foundation
600 Third Avenue, Floor 42
New York, NY 10016-1924
STUDY-RELATED PHONE NUMBER(S): 929-269-6801
Email: engagement@project8p.org