Chan Zuckerberg Initiative to fund 30 patient groups, aiming to build a model for tackling rare diseases
New Zealand Herald – Kathryn Hazeldine: The life of a 5-year-old with chromosome 8p condition unable to yet walk or talk
Bravo TV – Denise Richards Breaks Down While Explaining the Rare Disorder That Affects Her Daughter, Eloise
Fox 5 NY – Family of girl with rare chromosomal disorder creates nonprofit to help research condition
